Interviewed by Moyez Jiwa
Gay has been active in the Rare Disease community for over two decades and continues her efforts to build and support patient and family advocacy.
Co-founded ADCY5.org, the foundation for ADCY5-related dyskinesia. ADCY5.org supports world-renowned researchers who study the gene and its variant. She continues to build a community of hundreds with this disease, when they started with only 1.
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