Vol 3, No 1 (2018)

Patients as co-designers to improve the quality of care

From the Editor

This edition focuses on patients as co-designers of interventions to improve the quality of their care.


Given patients' first-hand knowledge of healthcare services, their ideas for change are essential to designing a successful patient experience. This editorial discusses experience-based co-design, a systematic, evidence-based approach that has been used successfully in many different healthcare settings in many countries.


"Slow co-production”, achieved by involving patients in in-depth research, can help deepen patient involvement in health care. In this case study, the authors describe how slow co-production offers a specific and mutually beneficial form of patient and public involvement and engagement. 

Power Up: Patient and public involvement in developing a shared decision-making app for mental health

Chloe L Edridge, Julian Edbrooke-Childs, Kate Martin, Louise Delane, Phoebe Averill, Amy Feltham, Jessica Rees, Grace Jeremy, Louise Chapman, Michael P Craven, Miranda Wolpert

Young people as active partners in the design of interventions is increasingly considered an integral part of research. This article presents results from a project involving young people as co-designers in a digital intervention for shared decision-making in mental health services.

The Partnership Co-Design Lab: Co-constructing a Patient Advisor Programme to increase adherence to rehabilitation after upper extremity replantation

Marie-Pascale Pomey, Johnny I Efanov, Josée Arseneault, Audrey-Maude Mercier, Valérie Lahaie, Olivier Fortin, Marc Haineault, Alain Michel Danino

A five-phase Patient Advisor Programme created by the Partnership Co-Design Lab led to higher rates of adherence to rehabilitation interventions for patients followed at the main rehabilitation centre compared to patients transferred to other, more remote, rehabilitation facilities.


Case Study

Experience-based co-design (EBCD) provides the opportunity to embed patient experience and input into service design. EBCD was used in the adolescent and young adult oncology setting to develop a transition pathway from hospital for young adults completing cancer treatment. 

Co-designing interventions in quality improvement initiatives: Notes from the field

Stuart A Green, Wendy Carnegie, Susan Barber, Dionne Matthew, Rachel Matthews
Extending patient involvement beyond co-design to implementation creates new levels of engagement and transparency. This article provides an overview of how improvement initiatives supported by a quality improvement programme have engaged patients in various clinical settings.

Experience-Based Co-Design: Tackling common challenges

Tara Dimopoulos-Bick, Paresh Dawda, Lynne Maher, Raj Verma, Victoria Palmer

There has been a surge in experience-based co-design (EBCD) efforts for quality improvement in health care and systems design globally. The authors identify common, shared challenges with using EBCD and their subsequent impact. 

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