Power Up: Patient and public involvement in developing a shared decision-making app for mental health

Chloe L Edridge, Julian Edbrooke-Childs, Kate Martin, Louise Delane, Phoebe Averill, Amy Feltham, Jessica Rees, Grace Jeremy, Louise Chapman, Michael P Craven, Miranda Wolpert

Abstract

Young people as active partners in the design of interventions is increasingly considered an integral part of research. This article presents results from a project involving young people as co-designers in a digital intervention for shared decision-making in mental health services.

Full Text:

PDF Export Citation

References

Vos T, Barber RM, Bell B, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990-2013: a systematic analysis for the Global Burden of Disease Study 2013. The Lancet. 2015;386(9995):743-800.

Kessler RC, Aguilar-Gaxiola S, Alonso J, et al. The global burden of mental disorders: an update from the WHO World Mental Health (WMH) surveys. Epidemiology and Psychiatric Sciences. 2009;18(1):23–33.

Kessler RC, Chiu WT, Demler O, et al. Prevalence, severity, and comorbidity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005 Jun;62(6):617–27.

O'Brien HL, Toms EG. What is user engagement? A conceptual framework for defining user engagement with technology. Journal of the Association for Information Science and Technology. 2008;59(6):938–55.

Buck D, Gamble C, Dudley L, et al. From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open. 2014;4(12).

Chapman L, Edbrooke-Childs J, Martin K, et al. A Mobile Phone App to Support Young People in Making Shared Decisions in Therapy (Power Up): Study Protocol. JMIR Res Protoc. 2017;6(10):e206.

Abrines-Jaume N, Midgley N, Hopkins K, et al. A qualitative analysis of implementing shared decision making in Child and Adolescent Mental Health Services in the United Kingdom: Stages and facilitators. Clinical Child Psychology and Psychiatry. 2014 2016/01/01;21(1):19–31.

Lang AR, Craven MP, Atkinson S, et al. Human factors multi-technique approach to teenage engagement in digital technologies health research. In Perspectives on HCI Research with Teenagers 2016 (pp. 61-101). Springer, Cham.

Craven MP, Lang AR, Martin JL. Developing mHealth Apps with researchers: multi-stakeholder design considerations. In International Conference of Design, User Experience, and Usability 2014 Jun 22 (pp. 15-24). Springer, Cham.

Craven MP, Selvarajah K, Miles R, et al. User requirements for the development of smartphone self-reporting applications in healthcare. In International Conference on Human-Computer Interaction 2013 Jul 21 (pp. 36-45). Springer, Berlin, Heidelberg.

.